Associated Press: As the Supreme Court Deliberates, Lives Hang in the Balance

Share

As the nation anxiously awaits any sign of the final Supreme Court decision on the Affordable Care Act, the wait seems even longer for millions of low-income, HIV-positive Americans whose lives will be deeply affected by this landmark ruling. The Associated Press recently featured a great story on this issue.

The new law, if upheld, will abolish the current disability requirement that keeps many low-income adults from receiving Medicaid. Right now, many people who cannot afford medical insurance often do not qualify for Medicaid, either, as they are not “disabled.”

 “This creates a cruel Catch 22,” the author writes, “At a stage when [HIV-positive people] are still active and productive, these people can’t afford the antiretroviral treatments that could help them stay that way.” These strong, resilient folks are in good company, though.

Activists, health professionals and an estimated 1.2 million people living with HIV have invested high hopes in the Affordable Care Act, anticipating that it could dramatically improve access to lifesaving care and treatment. The act is now in limbo as the high court deliberates on its constitutionality, notably its requirement that most Americans obtain health insurance. A ruling could come in June.

“The HIV treatment community sees the act as a critical step in our fight against the AIDS epidemic,” said Scott Schoettes of Lambda Legal, a national gay-rights advocacy group. “People have been counting on it, making plans based on its implementation, so for it to be pulled out from under their feet at this point would be a tremendous loss.”

Among its many provisions, the health care law has two major benefits for HIV-positive people: It expands Medicaid so that those with low incomes can get earlier access to treatment, and it eliminates limits on pre-existing conditions that have prevented many people with HIV from obtaining private insurance.

Read the full article here…

Medicare + Medicaid = California-Style Confusion

Share

California is one of fifteen states that have been approved to create a demonstration project that will attempt to integrate and coordinate care for people who are eligible for Medicaid and Medicare (dual eligible). Up until now, dual eligibles have been exempt from managed care because of the complexity of their health care needs as well as the complexity of combining two sets of benefits and two payment systems into a coordinated model of care.

The concept of integrating care for this population, which is typically sicker and poorer than those who have either Medicaid or Medicare alone, is important because, at best, it can be confusing to rely on two sets of benefits and, at worse, there can be a disconnect between the two causing disruption in care.  However, integration also brings challenges.

Monitoring these projects is important for people with HIV because about 80% of people with HIV who receive Medicare are also eligible for Medicaid (Medi-Cal in California). California has created a series of stakeholder meetings and work groups to plan for this demonstration project but serious concerns remain.

California plans to use passive enrollment, which means that people are auto-enrolled into a managed care plan, with a window of time during which they can opt-out. After the opt-out period there is a six month “lock in” – this means that people won’t be able to change plans for six months. The National Health Law Program (NHELP) has created an excellent brief explaining the essential protections necessary when passive enrollment is utilized.

We will report out further information on the duals coordinated care project in future blogs.

Resources:
National Health Law Program (NHELP) brief on passive enrollment protections
Families USA brief: State Demonstrations to Integrate Medicare and Medicaid
Federal Medicare-Medicaid Coordination Office

 

25% of People with HIV are Uninsured – Put your Knowledge to the Test!

Share

About one in four people with HIV is uninsured – a much higher rate than the rate in the general population of about 18.5 percent. To help you learn more about people who are uninsured, the Kaiser Family Foundation released a 10-question, interactive quiz. Questions cover everything from employer-sponsored coverage to Medicaid, from the Affordable Care Act to the estimated number of Americans without health insurance.

At the end of the quiz, you’ll see a list of resource you can use to educate yourself and others on the social cost of an uninsured population in the United States.

Click here to take the quiz!

Webinar Re-Cap: Health Care Reform in Your State- Making it Work for People with HIV

Share

Over 200 advocates joined us for a recent webinar focused on state-level implementation of health care reform and how to make it work for people with HIV.  If you missed the webinar or want to re-live the experience you can view a video recording (click on the image below), download slides and access other HIV Health Reform resources below.

And be sure to join us for our next webinar, Working Together: The Ryan White Program and Health Care Reform, on Thursday, May 31.  Click here to register.

DOWNLOAD SLIDES: State HCR Implementation Webinar Slides 4-26 (PDF)

Additional Resources

HIV & Health Reform Resources

Building the Affordable Care Act for people with HIV, piece by piece

Share

The major provisions of the Affordable Care Act will kick off in a year and a half — right around the corner.  Despite the looming Supreme Court decision and the uncertainty of the elections, implementation is moving along — faster than even we can keep track of.

Fortunately, the Center for Health Law and Policy Innovation at Harvard Law School/Treatment Access Expansion Project, released the latest update to its the Healthcare Reform Monitoring Report (pdf) series, which highlights the latest implementation developments. Get your copy of the report here.

At just four pages, it’s the fastest way we’ve found to stay current on health reform. Monitoring reports will be available every couple of months to help keep folks updated on the ever-moving target of Affordable Care Act implementation.